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The Regulation of Genomics Outside the State

Hosted by: ESRC Centre for Analysis of Risk and Regulation (LSE) and the ESRC Centre for Genomics in Society (University of Exeter)

Date: 10- 11 March 2005
: University of Exeter 

How effective are non-state actors in managing the challenges and risks posed by advances in genetics? The societal impacts of increasing genetic knowledge and technologies are of increasing significance, whether it be the social and psychological consequences of genetic testing, the development of so called 'dual use' technologies that are as applicable to biowarfare as to human well-being, or the 'privatization' of genetic knowledges by bio-business. Yet in many of these cases the state has opted to take a regulatory back-seat, preferring to 'outsource' regulation to private actors in the form of civil society organizations, corporations and health care professionals and scientists.

A workshop jointly hosted by CARR and EGENIS at Exeter University, set out to explore the possibilities and limits for governance through non-state actors in this important domain. The workshop brought together fifty academics and practitioners to discuss these issues over two days and included presentations on the failure of self-regulation for dual-use biomedical technologies by Dr. Filippa Corneliussen (LSE); the ethical, psychological and regulatory challenges of genetic testing by Dr Carlos Novas (LSE), Dr Paula Saukko (Egenis), and Stuart Hogarth (Cambridge); the factors shaping research agendas and funding in the biosciences by Dr Alf Game (BBSRC) and Dr Christophe Bonneuil (CNRS); and the disputed status of intellectual property rights over biotechnology products by Dr Jane Calvert (Egenis) and Dr Alain Pottage (LSE).

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Please follow the links for the papers and programme| for this event.